When Nathan Jenkins of Greenville, S.C., was born in November 2003, he was “monstrously tall,” says his mother, Lisa. So, when he started walking at around a year, she and her computer tech husband, Blake, thought Nathan’s constant falls were growing pains.

“We just thought it was a balance issue,” she says. “I didn’t think too much about it.”

It wasn’t until Nathan was a toddler that she realized something was amiss. His two older siblings could easily sprint up the stairs of their three-level home. But 2-year-old Nathan just sat there as if the stairs were Mount Everest. He couldn’t lift his foot up on a small curb, and he needed help to step down.

Lisa, a former French teacher and master’s student at the University of South Carolina, knew something wasn’t right, but at the time, she had no idea what that was until October 2006. That’s when she took Nathan, then nearly 3, to an Atlanta neurologist, who recommended a muscle biopsy, and learned he had limb-girdle muscular dystrophy (LGMD)

Read the rest of my article for Quest Magazine here.

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